I received this email from the Mayo Clinic on November 18th. It upset me and put me into a depressive nosedive for a couple of weeks. I have finally pulled out of it, but I am not pleased with Mayo. It feels dismissive. I have made an appointment with Park Nicollet's neurology department and followed the advice given to me here to go on the cancellation list. My appointment is at the end of April. We get our booster and flu shots on Friday. I'm making an appointment to see my primary in person the following week. I'm going to give her one more shot at listening to me. About two weeks ago my hair started falling out. In a weeks time my scalp became visible, and I had a lot of hair. This isn't right. I'm weak and terribly fatigued. It's as if I don't matter. I will ask for a referral to an endocrinologist, which will probably be available in August. I was on thyroid medication for several years. The doctor retired and no doctor would prescribe it because they felt I didn't need it. But.....I was prescribed Ozempic, a diabetes medication, for weight loss. Doesn't that lower blood sugar and can't that be dangerous? Rhetorical question. I didn't get the medication because insurance wouldn't pay for it and it costs, wait for it, $1007/mo. I wasn't comfortable about using it anyway. I found that Medicare will not pay for any weight loss medication or any eating disorder treatment. They'd rather pay for the resulting consequences.
So, remember the song by Crosby, Stills & Nash with the line I almost cut my hair ? I did cut my hair, about 11". Long, stringy grey hair is not lovely. Good thing I don't have any attachment to how long my hair is, but going bald hasn't been on my bucket list.
I'll end this not-on-the-bright-side tale with the observation that we have a very messed up system of care and delivery of healthcare services. Yet, Mark is getting proper care. He says it's because what is wrong with me doesn't have an obvious reason, like cancer that can be detected. It's easier to just set me aside. I know he's right.
We appreciate the confidence you have expressed in Mayo Clinic and thank you for your recent request.
The Division of General Internal Medicine, Minnesota has received your information. Unfortunately, demand for our health care services exceeds our capacity. We have thoroughly reviewed your provided materials to determine if we can add further value or treatment options to your care. Unfortunately, we are unable to offer you an appointment at this time. Please know decisions like this are not easy, Mayo Clinic strives to provide the best care possible to all of those in need.
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